Tag Archives: pain management

My Day Thursday..Went from Bad to H#$L PART 2

Hello World, Reba here again. Yep, as promised I am back to write about my day Thursday, which was just terrible on so many levels, even though, it started off like any other normal day, in pain, but I was moving getting household chores done.

In the last blog post, I had just left the pain management appt for myself, I walked out of the clinic when the phone call came in. My vehicle transmission had gone out, completely. The minimum to get the transmission fixed, at minimum, is 350.00 plus labor and the cost of fluids.

Yep, with that news, I was just outdone. First my pain is over the top, then some, now the only vehicle my family owns has bit the dust. I questioned myself, as to what else could go wrong, eventually I will learn not to ask that question.

My oldest daughter, Becky, took her daughter, Kristie, to New Orleans to have an MRI done. Kristie has been having some pretty massive migranes. I couldn’t cancel my pain management appoinment, we are in groups, and to miss an appoinment, I wouldn’t get seen for another 6 months. Becky didn’t want to have to wait for Kristie’s MRI, so, against my better judgment we decided to go our separate ways and conquer both appoinments. I never miss New Orleans appointments. I hardly ever miss local appointments unless I am stay home to babysit Kristie. Again, separating and attending both appointments was against my better judgment, but it must be done. I knew what my doctor’s appointment held in store for me and I thought that Kristie’s appointment was going to be a diagnosis of migraines, meds would be prescribed, and that would be the end of the appointment. BOY was I ever wrong.

My pain management appointment ended, the call about the transmission came in, then Becky called. In her voice, I can hear where she was fighting back tears, my heart sank. I feared that they had been in a car accident, millions of things went through my mind, but the words that came out of her mouth next, my heart sunk; Literally!

The next words out of her mouth will ring in my head forever, “Mom, Kristie has something called Chiari malformation, it’s a birth defect, and she needs brain surgery.” I had to make her repeat herself again. I just knew that I didn’t hear my grandbaby was going to be needing brain surgery, I was wrong, I did hear her right.

In my head I was thinking, birth defect? Kristie will be 5 years old in June, how is it we are just finding out about a birth defect? And what the heck is the Chiari malformation? And what is this brain surgery going to involve? And why is it my grandchild? Oh I had a million of questions going through my mind. Questions that we had no answers to because Becky was so stunned with the diagnosis, she was speechless when she was with the neurologist. I am not sure that I would have been any less speechless.

So once Becky and I were able to be face to face, I learned that Chairi malformation is a birth defect that is a bone at the base of Kristie’s skull. The bone in question is about 3 inches longer than what it needs to be. Oh and that’s not the worse of this whole darn (at this point I don’t mean darn) fiasco, the neurosurgeon will not be removing the bone from her head, but they will be making room in Kristie’s skull for the bone.

Becky is still in shock over the diagnosis, but she has started doing a little research here and there, my son in law is just outdone. I am trying to find out as much as possible. Using a social media network, I have found several post op moms of kids with Chiari, they are helping me with what I don’t know, what I need to know, what I need to do research on, what the symptoms are, what’s the best area hospitals w/ the best neurosurgeons. The list of what I don’t know is still very long, I am figuring I will never know everything there is to know about Chiari malformation, but I do hope to be at very least an informed Maw Maw, when it comes time for Kristie’s Neurosurgeon appointment.

I am praying that the diagnosis is wrong and is all a big mistake, but I am still going to be prepared in case.

Thanks for letting me rant,


Sorry For Not Keeping Up With My Blog and Yours

Hello World. It’s Holy Saturday for all of us Christians alike. Masses here in southeast Louisiana are at the usual times, plus a the area Cathedral has also added an 11AM mass for the morning.

Yesterday Lauren, Becky, Kristie Lynn and I spent the day with my brother and his family. The crawfish was great, the company was better. The three kids did an Easter egg hunt, with over 5 dozen plastic eggs, plus 3 dozen hard boiled eggs, the kids hunted eggs for almost 45 minutes. Breaking open the plastic eggs to find the treats inside, kept the 3 kids busy for another 30 minutes.

 Tomorrow we are all getting back together again, for Easter Sunday, my brother is doing a barbeque. I am making a coconut cake, potato salad, and a macaroni salad. Becky has found a recipe for a chocolate and peanut butter dish, so she’s making that and a banana pudding with vanilla wafers.

I have been very busy trying to get the storage units cleaned out and organized. I have tons of fabric, I can’t create new items if I don’t know what fabrics I have available to me in storage.

For me, especially today, pain has been a true issue. Even with my maintenance pain medicine, the pain in my right knee is terrible. Earlier I took a tramadol and went prop up my leg. That helped alleviate most of the pain, but as soon as I put weight on the leg to get out of the bed and come into the living room, the darn leg was throbbing again.

I had no choice, I took 1/2 of a loratab, which when I prop the leg back up, does help with the pain. My issue with Loratabs is that my brain seems to race and I don’t sleep well for a day or two. I guess I can’t be too particular and expect to be pain free and gain sleep all in one day.

I be back later, going fix dinner for Lauren and I,

My Pain and The Diagnosis I Have Recieved….

For several years now, I have felt that something was wrong with me. Pain was almost constant, then would leave. I am only 48 years old, but some days I feel as though I am 88 years old. I mean, I have the desire (most days), I have the knowledge, I have the need, yet, the pain never dissipates.

I take meds everyday, not only for my diabetes, which is medically necessary for that condition, but pain meds as well, for the condition, that for so long I was told were just in my head. I even had one emergency room doctor tell me that I was faking it to get pain pills. I was livid, I ended up leaving without his stupid prescription.

I have seen family doctors, orthopedic doctors, neurologist, and now pain management doctors. Each one has a new diagnosis, where should I start. I have neropathy from diabetes, it’s a mild case. I take nothing for that condition, just try to control my diabetes better.

I have arthritis of my right knee and my left shoulder, I also have been diagnosed with fibromyalgia and most recently chronic pain syndrome. My pain is constant, my life goes on, I am a single parent to a 16 year old mentally challenged homeschooled child. I have a house to clean, a child to keep up with, laundry to wash, groceries to get, and a life to live, yet the pain never stops.

The pain meds sometimes help to curb the pain, but the pain never completely goes away as I always have at least one body part throbbing in pain. So, as I type these blogs, I have never once mentioned my pain conditions, I didn’t want anyone thinking I was out for sympathy, but I have decided to follow bloggers who also have the same problems and be open and honest about my situation.
Now that I have shared this part of my life, I can now start sharing how I make it through the day with this pain, items that make my life easier, what makes my pain worse, and how I cope.


I also suffer with chronic pain, fibromyalgia, and arthritis, sharing this in hopes of helping others in the same situation.

PTSD - A Way Out.com

My pain receives as little recognition as possible.  My pain does not harbor harmful emotions or intent towards me.  Pain is faceless, odorless and invisible like the wind.

Science can not gauge its severity yet.  Others can not feel our pain or care about our plight.  Pain is just a warning signal(body mechanism) to protect us.
I go for power walks where my pain is aroused to the point, where my body wants to stop, then I go another twenty minutes.  This has many benefits physically and mentally.  My pain does not stop me from moving my legs and walking through it mindfully.
My own endorphins have helped kill the pain, also.  My own body is learning to accept and adjust to this stress on its own.  My ego knows pain does not stop me from exercising,  so later it does not stop me from enjoying other…

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