Tag Archives: kids

Worse News Came Down Wednesday!

Good morning, well almost good afternoon here in sunny, HOT, southeast Louisiana. I hope everyone is having an excellent Friday and has lots of plans for the weekend to come.

Wednesday, my grand daughter, Kristie, had an appointment w/ her neurosurgeon in New Orleans. It was the get the results from recent MRI to see if the spinal fluid is backing up into her neck. After all the prayers we had with us, I was sure hoping the results of the MRI was going to be more welcomed results than they were.

Unfortunately, the MRI results were not what we were expecting. Her chiari malformation has severely blocked her fluid flow, so surgery is our only option. Aubrie’s symptom of choking on nothing, has also only gotten worse, so Dr said to monitor her 24/7 to make sure she doesn’t choke. He was really an advocate for the surgery, he feels one of these times she will choke, and we, as her parents and grandparents, won’t be able to help her pull out of it.

So her surgery has been scheduled for 8/22, we have to be at the Oschner’s Hospital in New Orleans for 5 AM, surgery is set for 7.

I am babysitting and cooking lunch, I will post more in a few, I am also reading/liking/commenting on the blogs I follow.

Later,
Reba!

My Day Thursday..Went from Bad to H#$L PART 2

Hello World, Reba here again. Yep, as promised I am back to write about my day Thursday, which was just terrible on so many levels, even though, it started off like any other normal day, in pain, but I was moving getting household chores done.

In the last blog post, I had just left the pain management appt for myself, I walked out of the clinic when the phone call came in. My vehicle transmission had gone out, completely. The minimum to get the transmission fixed, at minimum, is 350.00 plus labor and the cost of fluids.

Yep, with that news, I was just outdone. First my pain is over the top, then some, now the only vehicle my family owns has bit the dust. I questioned myself, as to what else could go wrong, eventually I will learn not to ask that question.

My oldest daughter, Becky, took her daughter, Kristie, to New Orleans to have an MRI done. Kristie has been having some pretty massive migranes. I couldn’t cancel my pain management appoinment, we are in groups, and to miss an appoinment, I wouldn’t get seen for another 6 months. Becky didn’t want to have to wait for Kristie’s MRI, so, against my better judgment we decided to go our separate ways and conquer both appoinments. I never miss New Orleans appointments. I hardly ever miss local appointments unless I am stay home to babysit Kristie. Again, separating and attending both appointments was against my better judgment, but it must be done. I knew what my doctor’s appointment held in store for me and I thought that Kristie’s appointment was going to be a diagnosis of migraines, meds would be prescribed, and that would be the end of the appointment. BOY was I ever wrong.

My pain management appointment ended, the call about the transmission came in, then Becky called. In her voice, I can hear where she was fighting back tears, my heart sank. I feared that they had been in a car accident, millions of things went through my mind, but the words that came out of her mouth next, my heart sunk; Literally!

The next words out of her mouth will ring in my head forever, “Mom, Kristie has something called Chiari malformation, it’s a birth defect, and she needs brain surgery.” I had to make her repeat herself again. I just knew that I didn’t hear my grandbaby was going to be needing brain surgery, I was wrong, I did hear her right.

In my head I was thinking, birth defect? Kristie will be 5 years old in June, how is it we are just finding out about a birth defect? And what the heck is the Chiari malformation? And what is this brain surgery going to involve? And why is it my grandchild? Oh I had a million of questions going through my mind. Questions that we had no answers to because Becky was so stunned with the diagnosis, she was speechless when she was with the neurologist. I am not sure that I would have been any less speechless.

So once Becky and I were able to be face to face, I learned that Chairi malformation is a birth defect that is a bone at the base of Kristie’s skull. The bone in question is about 3 inches longer than what it needs to be. Oh and that’s not the worse of this whole darn (at this point I don’t mean darn) fiasco, the neurosurgeon will not be removing the bone from her head, but they will be making room in Kristie’s skull for the bone.

Becky is still in shock over the diagnosis, but she has started doing a little research here and there, my son in law is just outdone. I am trying to find out as much as possible. Using a social media network, I have found several post op moms of kids with Chiari, they are helping me with what I don’t know, what I need to know, what I need to do research on, what the symptoms are, what’s the best area hospitals w/ the best neurosurgeons. The list of what I don’t know is still very long, I am figuring I will never know everything there is to know about Chiari malformation, but I do hope to be at very least an informed Maw Maw, when it comes time for Kristie’s Neurosurgeon appointment.

I am praying that the diagnosis is wrong and is all a big mistake, but I am still going to be prepared in case.

Thanks for letting me rant,
Reba

Good Afternoon, How’s Things in Your Neck of the Woods?

Hello World, Reba here again! How’s life in your neck of the woods? Here in southeast Louisiana, we are at 80 degrees, humidity is low, a nice breeze blowing, sun out, yep, you guessed it life is good today!

Lauren likes to come to the library on Wednesdays to play the Wii sport games, so she’s inside playing, I am outside typing to ya’ll. Lauren needs a lot of socialization, this Wii sports thing is free; Free is good!

 I am pretty proud of myself, I was was able to get the internet wifi onto the laptop and downloaded spotify onto the iphone, so just jamming away, quietly of course! Yep, I am not technically inclined at all, thus the reason I have four children…LOL!

Gotta get my sun in as much as I can now, before I go to surgery. Yea surgery is a whole other topic, I get to that later, without many gory details.

While we on the topic of afternoon, what’s for suppa at your house? We are having breakfast for suppa. Yep, you guessed it, scrambled eggs, bacon, and biscuits. The bacon has been in there for about a month now, so it needs to be eaten and I am just lazy today!

Well, I wish ya’ll a great day, I will be back later,
Reba

Freaky Friday…of sorts

Hello World. I hope you day is going well. Things here are as hectic as always. Becky and I took Lauren to the psychologist yesterday, that’s a whole other story in it’s own, but I will do a blog later.

I am working on housework that hasn’t been touched since Wednesday morning. Our on site laundrymat is down to one washer, I am going to be doing laundry all day. Still have to pass the vaccumm and mop, but I do already have the dishwasher going and one load of laundry started.

Lauren is with Becky since the appt yesterday. Becky is going to be a part of a big garage sale tomorrow, so Lauren is helping with Kristie Lynn (Becky’s child) and helping Becky price items and pack stuff for tomorrow.

I am not here to talk about how much housework I have to do, as I am sure all of us have lots of housework to do. I am here to let my faithful readers know that I am going to go thru your blogs and read your blogs and at least like the blog, and leave comments if necessary. I have been liking all my the blogs that are coming thru my reader and not doing the same for my faithful readers. I am going to work on that this weekend.

Thanks for being faithful readers,
later,
Reba

Off to Try and Teach Lauren to Bowl…Again!

I posted Saturday night about our trip to the bowling alley with Lauren. Which was suppose to be a warm up for the bowling league she starts tomorrow. Lauren used to be able to bowl about 100 per game, give or take, Saturday night, she had problems even getting to break 40 points per game. Heck, Lauren didn’t even know how to correctly carry or throw the ball. I assume all her recent seizures, even though they are not epileptic, had something to do with that.

My oldest daughter, Becky, used to bowl on a league so Becky, and I are taking Lauren bowling this afternoon after Kaden is picked up. I am hoping that Becky can give Lauren some awesome tips and help her get her groove back as far as bowling is concerned.

If Lauren doesn’t get back the swing of things where bowling is concerned, I am going to have to see if she still can participate in the bowling league. I hate to not let her join, after I had already promised, yet, she’s going to be doing singles as well as team bowling. UGH!

OK, later,
Reba

It’s Another Manic Monday!

Hello World and good morning from my end of the swamps. For us stay at home Moms, our days are never the same from one day to the next, although you would think it would be. Life here isn’t even the same from one minute to the next, much less day to day. I wish it was, so my days would be planned out, no surprises, no exceptions, but then that would be boring. Life as it is, the house is a disaster, but the kids are all happy (for the most part), cleaned (for the most part) and fed, til one starts asking for snacks.

 Today, the little boy I babysit while his Mom attends school, Kaden, is potty training. I haven’t had to potty train a boy in 18 years, luckily for my mind, body, and carpets, his parents have him well potty trained, it’s just me having to remember to remind him to go.

The good potty training that Kaden is doing, he’s making up for in his actions. He has managed to pull one cat’s tail about 10 times, then kicked the other cat. He throws the bell balls and expects the cats to chase the balls, when they don’t he gets upset. I fussed, he cried, then apologized. So he’s back to being good, thankfully.

My daughter, Lauren, that is homeschooled, is so far off task, I could scream. Usually, if I am busy with household chores or Kaden, she will go find some homework to at least start on. Not today. She’s lying around like this house is cleaned and she has no chores….UGH! I was suppose to get her homeschooling work together last night for the week, but I fell asleep instead, I know bad Mommie moment.

I also have my youngest grandbaby, Kristie Lynn, who is usually a big handful, the good point of today, she’s off playing Barbie dolls. Of course the bedroom is a disaster, but hey, the quietness from at least one kid for a few minutes is priceless in my world.

OK, quietness has ended, two kids are screaming, third kid is staring at me,
later,
Reba