Tag Archives: grand kids

Worse News Came Down Wednesday!

Good morning, well almost good afternoon here in sunny, HOT, southeast Louisiana. I hope everyone is having an excellent Friday and has lots of plans for the weekend to come.

Wednesday, my grand daughter, Kristie, had an appointment w/ her neurosurgeon in New Orleans. It was the get the results from recent MRI to see if the spinal fluid is backing up into her neck. After all the prayers we had with us, I was sure hoping the results of the MRI was going to be more welcomed results than they were.

Unfortunately, the MRI results were not what we were expecting. Her chiari malformation has severely blocked her fluid flow, so surgery is our only option. Aubrie’s symptom of choking on nothing, has also only gotten worse, so Dr said to monitor her 24/7 to make sure she doesn’t choke. He was really an advocate for the surgery, he feels one of these times she will choke, and we, as her parents and grandparents, won’t be able to help her pull out of it.

So her surgery has been scheduled for 8/22, we have to be at the Oschner’s Hospital in New Orleans for 5 AM, surgery is set for 7.

I am babysitting and cooking lunch, I will post more in a few, I am also reading/liking/commenting on the blogs I follow.

Later,
Reba!

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My Granddaughter Neurosurgeon Appt on Monday!

Well, this blog is several days late, and probably a couple dollars short as my Paw-paw used to say, but here it is!
My youngest granddaughter, kristie, was diagnosed w/ a chiari malformation in mid May 2013.

What brought us to this point is the fact she was having migrants so bad, that she was turning purple crying in pain! She was sent to Oschners hospital in New Orleans to see a neurologist who was going to diagnosis her migraines after viewing her MRI.

The neurologist is a very dry man in the fact, he says what he has to say rather bluntly then leaves out! My daughter, Becky, had taken her BFF to this appt as I had a pain management appt that I couldn’t miss. Come to find out kristie, had other chiari symptoms that we had taken her to our local pediatrician for before, yet it was always brushed off!

Symptoms off top of my head was her choking on a cup of milk, to the point where I was ready to dial 911. Her body aches and pains were called growing pains. Her speech going from very clear and understandable to barely understandable at times, was diagnosed as her “being silly”!
The neuro surgeon wants an MRI of her neck, if her spinal fluid is backing up there, then surgery is our only option!

If the spinal fluid is not backing up into her neck, even though there’s not treatment for chiari, we do have options!

We didn’t get the “misdiagnosis” that we were so hoping for, but at least now, we do know what we are definitely dealing with, even tho kristie future is still unknown!

Thanks for letting me ramble on,
Later,
Reba