My Day Thursday..Went from Bad to H#$L PART 2

Hello World, Reba here again. Yep, as promised I am back to write about my day Thursday, which was just terrible on so many levels, even though, it started off like any other normal day, in pain, but I was moving getting household chores done.

In the last blog post, I had just left the pain management appt for myself, I walked out of the clinic when the phone call came in. My vehicle transmission had gone out, completely. The minimum to get the transmission fixed, at minimum, is 350.00 plus labor and the cost of fluids.

Yep, with that news, I was just outdone. First my pain is over the top, then some, now the only vehicle my family owns has bit the dust. I questioned myself, as to what else could go wrong, eventually I will learn not to ask that question.

My oldest daughter, Becky, took her daughter, Kristie, to New Orleans to have an MRI done. Kristie has been having some pretty massive migranes. I couldn’t cancel my pain management appoinment, we are in groups, and to miss an appoinment, I wouldn’t get seen for another 6 months. Becky didn’t want to have to wait for Kristie’s MRI, so, against my better judgment we decided to go our separate ways and conquer both appoinments. I never miss New Orleans appointments. I hardly ever miss local appointments unless I am stay home to babysit Kristie. Again, separating and attending both appointments was against my better judgment, but it must be done. I knew what my doctor’s appointment held in store for me and I thought that Kristie’s appointment was going to be a diagnosis of migraines, meds would be prescribed, and that would be the end of the appointment. BOY was I ever wrong.

My pain management appointment ended, the call about the transmission came in, then Becky called. In her voice, I can hear where she was fighting back tears, my heart sank. I feared that they had been in a car accident, millions of things went through my mind, but the words that came out of her mouth next, my heart sunk; Literally!

The next words out of her mouth will ring in my head forever, “Mom, Kristie has something called Chiari malformation, it’s a birth defect, and she needs brain surgery.” I had to make her repeat herself again. I just knew that I didn’t hear my grandbaby was going to be needing brain surgery, I was wrong, I did hear her right.

In my head I was thinking, birth defect? Kristie will be 5 years old in June, how is it we are just finding out about a birth defect? And what the heck is the Chiari malformation? And what is this brain surgery going to involve? And why is it my grandchild? Oh I had a million of questions going through my mind. Questions that we had no answers to because Becky was so stunned with the diagnosis, she was speechless when she was with the neurologist. I am not sure that I would have been any less speechless.

So once Becky and I were able to be face to face, I learned that Chairi malformation is a birth defect that is a bone at the base of Kristie’s skull. The bone in question is about 3 inches longer than what it needs to be. Oh and that’s not the worse of this whole darn (at this point I don’t mean darn) fiasco, the neurosurgeon will not be removing the bone from her head, but they will be making room in Kristie’s skull for the bone.

Becky is still in shock over the diagnosis, but she has started doing a little research here and there, my son in law is just outdone. I am trying to find out as much as possible. Using a social media network, I have found several post op moms of kids with Chiari, they are helping me with what I don’t know, what I need to know, what I need to do research on, what the symptoms are, what’s the best area hospitals w/ the best neurosurgeons. The list of what I don’t know is still very long, I am figuring I will never know everything there is to know about Chiari malformation, but I do hope to be at very least an informed Maw Maw, when it comes time for Kristie’s Neurosurgeon appointment.

I am praying that the diagnosis is wrong and is all a big mistake, but I am still going to be prepared in case.

Thanks for letting me rant,
Reba

Lauren's Cat Arizona Being a Pain

Lauren’s cats are ALWAYS into something. If they aren’t causing havoc at some part of the house, they are annoying me up close and personal.
Arizona is about 7-8 months old and this is how she chooses to annoy me in the morning while I am attempting to brush my teeth…Darn Cats!
Later,
Rebac

Good Afternoon, How’s Things in Your Neck of the Woods?

Hello World, Reba here again! How’s life in your neck of the woods? Here in southeast Louisiana, we are at 80 degrees, humidity is low, a nice breeze blowing, sun out, yep, you guessed it life is good today!

Lauren likes to come to the library on Wednesdays to play the Wii sport games, so she’s inside playing, I am outside typing to ya’ll. Lauren needs a lot of socialization, this Wii sports thing is free; Free is good!

 I am pretty proud of myself, I was was able to get the internet wifi onto the laptop and downloaded spotify onto the iphone, so just jamming away, quietly of course! Yep, I am not technically inclined at all, thus the reason I have four children…LOL!

Gotta get my sun in as much as I can now, before I go to surgery. Yea surgery is a whole other topic, I get to that later, without many gory details.

While we on the topic of afternoon, what’s for suppa at your house? We are having breakfast for suppa. Yep, you guessed it, scrambled eggs, bacon, and biscuits. The bacon has been in there for about a month now, so it needs to be eaten and I am just lazy today!

Well, I wish ya’ll a great day, I will be back later,
Reba

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These are my youngest daughter Lauren’s two cats! Oreo, the mutt cat is going to be a yr old Friday, Arizona the Siamese, is adopted but about 7 months old!
Have a great night,
Reba

Lauren also started doing matching sets...

Lauren, on her own, has decided to start doing matching bracelet and necklace sets. She only uses plastic beads as I am not trusting of her enough yet to set her loose with glass beads. Lauren does all of her own designs, I do all the crimping to make sure the bracelet is closed securely.
Yep, I am one proud Momma and she has sold 1 complete set to someone on FB, 3 necklaces to a BFF of mine, and several bracelets at craft shows, so she is doing quite well.

My youngest daughter bracelets

We started using her desire to bead bracelets as a therapy to help her build confidence, keep her on task, and try to help her recover from her anxiety and PTSD. Imagine our surprise when these bracelets started selling…
Thanks for stopping in,
Reba

Thanks to Fibromyalgia, I Spent this Gorgeous Sunday In Bed

I am sure by now, everyone has head of fibromyalgia. In case you haven’t, fibromyalgia is a muscle disorder that causes deep pain in the muscles of the body, both at the joints and not. The pain of fibro can not be described by one word, even one sentence, other than “this crap hurts”.

For me, fibro presents me with daily pain issues, ranging from spasms to just down right pain. I do take meds daily to help out with the pain, but as with everything else in life, it works most of the time. I have also been diagnosed recently with chronic pain syndrome, which is self-explanatory, and arthritis of my right knee and left shoulder.
I see my family dr tomorrow, as I already have my 6 month dr appt scheduled, which after today, is  a very good thing.

I did like a bunch of your blog posts, I am working on more of those now, I hope to be all caught up by the end of the week or so. Please be patient with me!

Later,
Reba

Our Booth at the Craft Fair

We attended a craft fair for the last 3 weekends, at least one per weekend, this is our booth set up and ready to go…Yes, people don’t know how to park, and the guy directing parking was not exactly the brightest bulb in the bunch!!

Thanks,
Later,
Reba