Category Archives: children

Worse News Came Down Wednesday!

Good morning, well almost good afternoon here in sunny, HOT, southeast Louisiana. I hope everyone is having an excellent Friday and has lots of plans for the weekend to come.

Wednesday, my grand daughter, Kristie, had an appointment w/ her neurosurgeon in New Orleans. It was the get the results from recent MRI to see if the spinal fluid is backing up into her neck. After all the prayers we had with us, I was sure hoping the results of the MRI was going to be more welcomed results than they were.

Unfortunately, the MRI results were not what we were expecting. Her chiari malformation has severely blocked her fluid flow, so surgery is our only option. Aubrie’s symptom of choking on nothing, has also only gotten worse, so Dr said to monitor her 24/7 to make sure she doesn’t choke. He was really an advocate for the surgery, he feels one of these times she will choke, and we, as her parents and grandparents, won’t be able to help her pull out of it.

So her surgery has been scheduled for 8/22, we have to be at the Oschner’s Hospital in New Orleans for 5 AM, surgery is set for 7.

I am babysitting and cooking lunch, I will post more in a few, I am also reading/liking/commenting on the blogs I follow.

Later,
Reba!

LIfe’s update!

Well, it has been quite a long time since I posted here. I had my surgery, the partial hysterectomy is a done deal….HAPPY, HAPPY!

 

 

Recovery was nothing nice, in fact, it was rather tough! Luckily, I had my oldest daughter, Becky, and my youngest daughter here to help take care of me. I hated to be in bed for that solid week, so I thought I was going to get up and do housework, the pain was thru the roof, needless to say, I learned my lesson from that very painful experience.

Life is starting to level off, for the most part. Trying to get my business up and running again, as well as life back into some sort of order.
I will post more in a few,
Later,
Reba

My Granddaughter Neurosurgeon Appt on Monday!

Well, this blog is several days late, and probably a couple dollars short as my Paw-paw used to say, but here it is!
My youngest granddaughter, kristie, was diagnosed w/ a chiari malformation in mid May 2013.

What brought us to this point is the fact she was having migrants so bad, that she was turning purple crying in pain! She was sent to Oschners hospital in New Orleans to see a neurologist who was going to diagnosis her migraines after viewing her MRI.

The neurologist is a very dry man in the fact, he says what he has to say rather bluntly then leaves out! My daughter, Becky, had taken her BFF to this appt as I had a pain management appt that I couldn’t miss. Come to find out kristie, had other chiari symptoms that we had taken her to our local pediatrician for before, yet it was always brushed off!

Symptoms off top of my head was her choking on a cup of milk, to the point where I was ready to dial 911. Her body aches and pains were called growing pains. Her speech going from very clear and understandable to barely understandable at times, was diagnosed as her “being silly”!
The neuro surgeon wants an MRI of her neck, if her spinal fluid is backing up there, then surgery is our only option!

If the spinal fluid is not backing up into her neck, even though there’s not treatment for chiari, we do have options!

We didn’t get the “misdiagnosis” that we were so hoping for, but at least now, we do know what we are definitely dealing with, even tho kristie future is still unknown!

Thanks for letting me ramble on,
Later,
Reba

How’s Your Tuesday going?

Hello World! Greetings for the swamps of Southeast Louisiana. How’s your Tuesday going? I hope this post greets you in the best of health and spirits. Today started off bad, I had my GYN appointment, which was very painful on many levels, but that’s behind me now.

My hysterectomy is scheduled for 6/5. I am trying to get everything done and ready to go for me to be down for about two weeks. I am hoping that my granddaughter’s Chiari brain surgery can wait at least til I have recovered enough to go to the hospital to stay the length of her hospital stay. Kristie will see the neurosurgeon on 6/3, so we will know from there, when the surgery will be and what we should expect.

Lauren has another art class at the library tonite, so I am sitting outside on the deck, typing this blog. Again, weather is nice and warm, light breeze blowing, sun is going down and no mosquitoes are out, so yea at this moment life is good today.

Dinner will be either egg or grilled cheese sandwiches, depending on what Lauren wants when we get home. I usually throw something into the crockpot on days when I know I won’t be home most of the day, but the day started off late, since Lauren and I both overslept, so we had to dress, eat breakfast and out the door we went for me to make my doctor’s  appointment.

I am not a Mom to swear off processed foods for my child, although I do monitor the amount she has because so of those additives in the processed foods have been known to cause allergies and with her mental state, I don’t need any other problems. So, 90% of what is fixed in my house is fresh or at least out of a box. I tend to stay away from those tv dinners. Not only due to the additives, but with Lauren growing so much, so fast, it would take at least two of the smaller dinners to fill her up.

Ok, I guess that’s about it for this babbling session,
I hope everyone has a great evening,
Reba

 

My Day Thursday..Went from Bad to H#$L PART 2

Hello World, Reba here again. Yep, as promised I am back to write about my day Thursday, which was just terrible on so many levels, even though, it started off like any other normal day, in pain, but I was moving getting household chores done.

In the last blog post, I had just left the pain management appt for myself, I walked out of the clinic when the phone call came in. My vehicle transmission had gone out, completely. The minimum to get the transmission fixed, at minimum, is 350.00 plus labor and the cost of fluids.

Yep, with that news, I was just outdone. First my pain is over the top, then some, now the only vehicle my family owns has bit the dust. I questioned myself, as to what else could go wrong, eventually I will learn not to ask that question.

My oldest daughter, Becky, took her daughter, Kristie, to New Orleans to have an MRI done. Kristie has been having some pretty massive migranes. I couldn’t cancel my pain management appoinment, we are in groups, and to miss an appoinment, I wouldn’t get seen for another 6 months. Becky didn’t want to have to wait for Kristie’s MRI, so, against my better judgment we decided to go our separate ways and conquer both appoinments. I never miss New Orleans appointments. I hardly ever miss local appointments unless I am stay home to babysit Kristie. Again, separating and attending both appointments was against my better judgment, but it must be done. I knew what my doctor’s appointment held in store for me and I thought that Kristie’s appointment was going to be a diagnosis of migraines, meds would be prescribed, and that would be the end of the appointment. BOY was I ever wrong.

My pain management appointment ended, the call about the transmission came in, then Becky called. In her voice, I can hear where she was fighting back tears, my heart sank. I feared that they had been in a car accident, millions of things went through my mind, but the words that came out of her mouth next, my heart sunk; Literally!

The next words out of her mouth will ring in my head forever, “Mom, Kristie has something called Chiari malformation, it’s a birth defect, and she needs brain surgery.” I had to make her repeat herself again. I just knew that I didn’t hear my grandbaby was going to be needing brain surgery, I was wrong, I did hear her right.

In my head I was thinking, birth defect? Kristie will be 5 years old in June, how is it we are just finding out about a birth defect? And what the heck is the Chiari malformation? And what is this brain surgery going to involve? And why is it my grandchild? Oh I had a million of questions going through my mind. Questions that we had no answers to because Becky was so stunned with the diagnosis, she was speechless when she was with the neurologist. I am not sure that I would have been any less speechless.

So once Becky and I were able to be face to face, I learned that Chairi malformation is a birth defect that is a bone at the base of Kristie’s skull. The bone in question is about 3 inches longer than what it needs to be. Oh and that’s not the worse of this whole darn (at this point I don’t mean darn) fiasco, the neurosurgeon will not be removing the bone from her head, but they will be making room in Kristie’s skull for the bone.

Becky is still in shock over the diagnosis, but she has started doing a little research here and there, my son in law is just outdone. I am trying to find out as much as possible. Using a social media network, I have found several post op moms of kids with Chiari, they are helping me with what I don’t know, what I need to know, what I need to do research on, what the symptoms are, what’s the best area hospitals w/ the best neurosurgeons. The list of what I don’t know is still very long, I am figuring I will never know everything there is to know about Chiari malformation, but I do hope to be at very least an informed Maw Maw, when it comes time for Kristie’s Neurosurgeon appointment.

I am praying that the diagnosis is wrong and is all a big mistake, but I am still going to be prepared in case.

Thanks for letting me rant,
Reba

Good Afternoon, How’s Things in Your Neck of the Woods?

Hello World, Reba here again! How’s life in your neck of the woods? Here in southeast Louisiana, we are at 80 degrees, humidity is low, a nice breeze blowing, sun out, yep, you guessed it life is good today!

Lauren likes to come to the library on Wednesdays to play the Wii sport games, so she’s inside playing, I am outside typing to ya’ll. Lauren needs a lot of socialization, this Wii sports thing is free; Free is good!

 I am pretty proud of myself, I was was able to get the internet wifi onto the laptop and downloaded spotify onto the iphone, so just jamming away, quietly of course! Yep, I am not technically inclined at all, thus the reason I have four children…LOL!

Gotta get my sun in as much as I can now, before I go to surgery. Yea surgery is a whole other topic, I get to that later, without many gory details.

While we on the topic of afternoon, what’s for suppa at your house? We are having breakfast for suppa. Yep, you guessed it, scrambled eggs, bacon, and biscuits. The bacon has been in there for about a month now, so it needs to be eaten and I am just lazy today!

Well, I wish ya’ll a great day, I will be back later,
Reba

Lauren also started doing matching sets...

Lauren, on her own, has decided to start doing matching bracelet and necklace sets. She only uses plastic beads as I am not trusting of her enough yet to set her loose with glass beads. Lauren does all of her own designs, I do all the crimping to make sure the bracelet is closed securely.
Yep, I am one proud Momma and she has sold 1 complete set to someone on FB, 3 necklaces to a BFF of mine, and several bracelets at craft shows, so she is doing quite well.