Well, this blog is several days late, and probably a couple dollars short as my Paw-paw used to say, but here it is!
My youngest granddaughter, kristie, was diagnosed w/ a chiari malformation in mid May 2013.
What brought us to this point is the fact she was having migrants so bad, that she was turning purple crying in pain! She was sent to Oschners hospital in New Orleans to see a neurologist who was going to diagnosis her migraines after viewing her MRI.
The neurologist is a very dry man in the fact, he says what he has to say rather bluntly then leaves out! My daughter, Becky, had taken her BFF to this appt as I had a pain management appt that I couldn’t miss. Come to find out kristie, had other chiari symptoms that we had taken her to our local pediatrician for before, yet it was always brushed off!
Symptoms off top of my head was her choking on a cup of milk, to the point where I was ready to dial 911. Her body aches and pains were called growing pains. Her speech going from very clear and understandable to barely understandable at times, was diagnosed as her “being silly”!
The neuro surgeon wants an MRI of her neck, if her spinal fluid is backing up there, then surgery is our only option!
If the spinal fluid is not backing up into her neck, even though there’s not treatment for chiari, we do have options!
We didn’t get the “misdiagnosis” that we were so hoping for, but at least now, we do know what we are definitely dealing with, even tho kristie future is still unknown!
Thanks for letting me ramble on,